Speaking Up for the Quiet Signs
Speaking Up for the Quiet Signs
When we think about autism, many of us imagine certain clear
signs: a child who avoids eye contact, doesn’t respond to their name, or
doesn’t smile. These have long been seen as classic “red flags” that prompt
evaluations and early diagnosis.
But what if your child does have some of these
behaviors? What if they smile, respond to their name, and even make eye contact
— yet still struggle deeply in ways that aren’t immediately obvious?
The Signs That Didn’t Fit the Script
My son Colton could do many of the things people typically
think rule out autism. As a baby and toddler, he smiled. He looked at people.
He would often turn when his name was called. He even passed his 18-month
autism screening with no concerns flagged.
But everything shifted around age three, when he experienced
a speech regression and lost all of his “real” words. When I brought up autism
as a possible explanation, I was told, “Well, regression can be a sign of
autism, but he smiles and makes eye contact — so we’re not concerned about
that.” As a new mom, I trusted what I was told. I didn’t question it. I let
it go.
What I didn’t realize was that Colton had actually been
showing subtle signs of autism at home as early as 7 to 9 months old. But as a
first-time mom, I didn’t know that the behaviors I was seeing weren’t typical.
I thought they were just part of who he was.
Because of that early reassurance — and the misconception
that autism always means a lack of eye contact or smiles — his diagnosis was
delayed for years. We believed it was “just” a speech delay. But as time went
on, other concerns began to emerge. One little red flag after another. Small
things that didn’t seem like much at first, but kept adding up.
A Different Autism Timeline
Something in my gut told me there was more going on — even
if our pediatrician, his teachers, and even well-meaning family friends didn’t
see it. It was like he was aging backwards.
Things that didn’t bother him as an infant or toddler, bothered him immensely
at 3-5 years old.
I finally made the call myself. I reached out to our local
autism center and asked for Colton to be placed on the waitlist for an
evaluation. He was 7 years old.
Looking back, I’m so
glad I finally trusted myself.
Then finally on June 12, 2025 after a 2 plus year wait,
we got our diagnosis.
Several weeks later I attended a parent orientation for
families new to autism diagnosis. Nearly every family there had a child under
the age of four, newly diagnosed, just beginning their journeys.
I looked around and realized: my son is almost 9 and a half.
Our path has been different. Longer. Harder in some ways.
But his story is just as important.
Not so Obvious
Looking back, there were several unique traits Colton showed
early on that, in hindsight, may have been early indicators of neurodivergence.
At the time, they didn’t raise alarms — especially since he was hitting certain
milestones and seemed so engaged in his own way.
Important note: Just because my child is neurodivergent doesn’t mean that every child who shares similar traits is as well. Every child develops differently, and context matters. This is simply our experience — shared in hopes it might help another parent start asking questions or trusting their instincts a little sooner.
Why Speaking Up Matters
We need to broaden the conversation about autism and the
“quiet signs” — the ones that don’t match the stereotypes but are very real.
- Autism
can look very different in every child.
- Early
smiles and eye contact don’t mean a child isn’t autistic.
- Some
children, especially those with Level 1 autism or multiple co-occurring
conditions, can mask or compensate in ways that make their struggles
invisible.
By sharing stories like mine, I hope to raise awareness for
families and professionals alike — to encourage listening closely, looking
deeper, and trusting parents who know their children best.
For Families Still Searching
If your child doesn’t fit the typical mold, if you’ve been
told “he can’t have autism because he smiles” or “she makes eye contact, so
it’s not that,” please don’t give up. Quiet signs matter. Your concerns matter.
And help is possible.
No matter the age or timing of diagnosis, every family
deserves support, understanding, and hope.
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